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Rheumatic Heart Disease Australia

Queensland RHD Register and Control Program

Acute rheumatic fever is a notifiable condition in Queensland.


The Queensland RHD Register and Control Program aims to improve detection, monitoring, and management of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) in Aboriginal and Torres Strait Islander communities through a coordinated register and control program which includes:

  • The implementation and maintenance of a dedicated state wide patient register and recall system for ARF and RHD;
  • Improvement of clinical care including improved delivery of and adherence to secondary antibiotic prophylaxis;
  • Provision of education and training for health care providers, individuals, families and communities; and
  • Collection and provision of data for national monitoring and reporting and measuring program effectiveness in the detection and management of ARF and RHD.

The Queensland RHD Control Program has a state-wide coordination unit based in Cairns and Clinical Nurse Consultants and Indigenous Health Workers located in Hospital and Health Services in North West, Townsville and Mackay, Cairns and Hinterland and Torres Cape.

The Queensland RHD Control Program works with 16 Government Hospital and Health Services and 27 Aboriginal Medical Services and with tertiary referral centres. The program focusses on adding value to existing structures, systems and services by:

  • Providing education to health staff
  • Providing advice and support to clients and family members in conjunction with staff
  • Providing advice on clients’ treatment requirements
  • Developing educational and promotional materials and resources
  • Building capacity in local communities and health service facilities

Data Protection

The release of ARF and RHD data by the Queensland RHD Register and Control Program is governed by processes which protect the privacy and confidentiality of individuals. The process for applications to obtain data can be found in the Data Request Guidelines and Application.

State legislation and notification

ARF is a notifiable condition in Queensland. Medical and nurse practitioners have a legal duty to provide particular information on a patient when they become aware that the patient has, or is being treated for, ARF and/or RHD. For further details see the attached notification form, go to the Department of Health website or contact the Queensland RHD Register and Control Program.

Contact

T: 1300 135 854 or 07 42265544
F: 07 4051 4322
E: ArfRhdRegister@health.qld.gov.au

 


New South Wales

Northern Territory