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Rheumatic Heart Disease Australia

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END RHD

The END RHD Coalition is bringing together many of the leading organisations working to address the disease, we’re leading the charge to END RHD by:

  • Working with the communities most at risk of rheumatic heart disease in Australia. Only through Indigenous-owned, community-led strategies will we be able to successfully tackle the disease.
  • Securing funding and the political will to turn the world class research conducted by the End Rheumatic Heart Disease Centre of Research Excellence (END RHD CRE) into action.
  • Educating and empowering Australians about the role they can play in ending RHD.

Heart Foundation

The Heart Foundation’s purpose is to reduce premature death and suffering from heart, stroke and blood vessel disease through:

  • funding world-class cardiovascular research
  • guiding health professionals on preventing and treating heart disease
  • educating Australians about making healthy choices
  • supporting people living with heart conditions
  • advocating to government and industry to improve heart health in Australia.

The Heart Foundation is a federated charity comprising eight state and territory divisions, and a national body. RHDAustralia and the RHD Control Programs collaborate with state, territory and the national Heart Foundation on education and training initiatives, advocacy and awareness raising for people living with RHD.

The Heart Foundation were partners in the development and publication of the Australian Guideline for Prevention, Diagnosis and Management of Acute Rheumatic Fever and Rheumatic Heart Disease (2nd Edition) and produce evidence based resources for patients and health professional on all aspects of heart health.


Australian Indigenous HealthInfoNet

The HealthInfoNet‘s translational research aims at providing the knowledge and other information needed for practitioners and policy-makers to make informed decisions in their work.

These days, there is so much research and other information being produced that most busy workers find it difficult to keep up to date with the latest developments in their field. Our work, which falls broadly in the area of implementation research, is concerned with ensuring that the results of research reaches those in the sector to inform their everyday policy and practice.  This is also known as knowledge exchange research and aims to make research and other information available in a form that has immediate, practical utility for practitioners and policy-makers in the area of Aboriginal and Torres Strait Islander health. The cornerstones of effective knowledge exchange is information that is timely, accessible and relevant.

The heart health portal on the Australian Indigenous HealthInfoNet website includes a focus on ARF and RHD among Aboriginal and Torres Strait Islander people.


World Heart Federation

The World Heart Federation is dedicated to leading the global fight against cardiovascular disease (CVD). It aligns its efforts around the World Health Organization’s related target of reducing premature CVD mortality of 25% by 2025. With its members, the World Heart Federation works to build global commitment to addressing cardiovascular health at the policy level, generates and exchanges ideas, shares best practice, advances scientific knowledge and promotes knowledge transfer to tackle cardiovascular disease- the number one killer. It is a growing membership organization that brings together the strength of cardiac societies and heart foundations from more than 100 countries.

25x25<25 RHD Goal  » 

As the world’s leading global CVD (cardiovascular disease) organization and as a co-founder of the RHD Action Alliance, the World Heart Federation has set itself the goal of achieving a 25% reduction in premature deaths from RF and RHD among individuals aged <25 years by 2025.


RHD Action 

RHD Action is the global movement to reduce the burden of rheumatic heart disease (RHD) in vulnerable populations of all ages throughout the world. Initiated in September 2014 under the auspices of the UN Every Woman Every Child (EWEC) commitment, this movement will add to ongoing global efforts contributing to the World Health Organization (WHO) and World Heart Federation (WHF) goals to reduce premature mortality by the year 2025.

The driving force behind this global movement is the RHD Action Alliance, a coalition of three global organizations: Medtronic Philanthropy, the World Heart Federation and RhEACH, working together toward the shared goal of ending RHD. Critically reinforcing this global movement are the RHD Action Countries: a cohort of countries wherein government and partner institutions are actively engaged in achieving specific RHD targets within their geographies, while also strengthening their health systems.

The RHD Action Alliance Resource Hub is a repository of tools and resources for health professionals, program coordinators, advocates and people living with RHD.


Reach

Reach is a technical support and policy translation initiative to amplify rheumatic heart disease control efforts locally, regionally and globally. Reach aims to identify, describe and disseminate solutions for this neglected disease and to reduce burden on vulnerable populations around the world. Reach partners with a broad range of stakeholders - including clinicians, other disease communities, academics, funders, governments, industry and people living with RHD - to achieve common goals.


Her Heart

Her Heart's mission is to become the go-to-place for Australian women to access the latest research findings, clinical information, health and lifestyle advice around heart disease for women. They want women to feel empowered through knowledge and act on this information to change their lifestyle and to effectively contribute to life saving awareness about heart disease for women.

Goals

  • To provide motivation and education to every woman in the world.
  • To stimulate and drive change, through awareness, education, and prevention.
  • To advocate for increased investment in the promotion of women’s heart health and position Australia as a leader in reducing deaths.
  • To create business opportunities that sets Her Heart apart from the competition. We want our work to add up to something – one life saved every hour!

New Zealand Rheumatic Fever Prevention Programme (RFPP)

The New Zealand Government’s Ministry of Health works with other government agencies, health organisations, community and philanthropic groups, researchers and professional bodies to reduce New Zealand’s rheumatic fever rate.

The Ministry’s Rheumatic Fever Prevention Programme (RFPP) was established in 2011 to prevent and treat strep throat infections, which can lead to rheumatic fever. The government has invested over $65 million to identify and trial new initiatives to reduce the rheumatic fever rates throughout New Zealand. The RFPP has three main strategies:

  • Increase awareness of rheumatic fever, what causes it and how to prevent it
  • Reduce household crowding and therefore reduce household transmission of strep throat bacteria within households.
  • Improve access to timely and effective treatment for strep throat infections in priority communities.

Information about the RFPP, resources for health professionals and health promotion resources can be found on the following sites:

Ministry of Health » 
Health Promotion Agency » 
Community Awareness »