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Rheumatic Heart Disease Australia

RHD Australia

Useful links

Australian Indigenous HealthInfoNet

The Australian Indigenous HealthInfoNet is an innovative internet resource based at the Edith Cowan University in Perth. The HealthInfoNet‘s mission is to contribute to improving the health of Australia’s Aboriginal and Torres Strait Islander peoples through research translation; to provide knowledge and other information needed for practitioners and policy-makers to make informed decisions. The HealthInfoNet does this by

  • conducting research;
  • disseminating relevant information;
  • facilitating information exchange; and
  • providing internet and related training.

The HealthInfoNet heart health portal includes a focus on ARF and RHD.


CSANZ

The Cardiac Society of Australia and New Zealand (CSANZ) is the professional body for cardiologists, researchers, scientists, nurses and other health professionals working in the area of cardiology. The CSANZ is based in Sydney, Australia (head office) and Wellington, New Zealand (regional office). The Society works with members and partners to advance medical practice to improve the quality of care for people with heart disease. It does this by

  • hosting scientific meetings;
  • providing professional scholarships, fellowships and awards; and
  • supporting clinical training and professional development of its members through social media, lectures, and journals.

The Heart Foundation is a federated charity comprising eight state and territory divisions, and a national body. RHDAustralia and the RHD Control Programs collaborate with state, territory and the national Heart Foundation on education and training initiatives, advocacy and awareness raising for people living with RHD.

The Heart Foundation were partners in the development and publication of the Australian Guideline for Prevention, Diagnosis and Management of Acute Rheumatic Fever and Rheumatic Heart Disease (2nd Edition) and produce evidence based resources for patients and health professional on all aspects of heart health.


END RHD

END RHD is a coalition (partnership) of leading Australian organisations calling for action and working together to end RHD in Australia. END RHD is based at the Perth Children’s Hospital, and its activity includes:

  • working with Australian communities most at risk of RHD
  • securing funding and political support to translate world class research conducted by the End RHD Centre of Research Excellence into action.
  • educating and empowering Australians about the role they can play in ending RHD

Heart Foundation (Australia)

The Heart Foundation is a national health promotion charity with offices in each Australian state and territory. The Foundation’s work focuses on stopping heart disease in Australia. They do this by

  • funding world-class cardiovascular research;
  • guiding health professionals on preventing and treating heart disease;
  • educating Australians about making healthy lifestyle choices;
  • supporting people living with heart conditions; and
  • advocating to government and industry to improve heart health in Australia.

HeartKids

HeartKids is a community organisation based in Sydney. Their aim is to support children and teenagers affected by congenital heart disease and their families to lead the most fulfilling life possible and to reach their personal goals. HeartKids:

  • advocates for the needs of people with congenital heart disease, their families and carers.
  • provides quality information to guide families on their whole life journey.
  • drives world class research into the causes, treatment and management of congenital heart disease.
  • delivers high quality support services via all major Australian children’s hospitals and in the community.

HeartKids also has an agenda for rheumatic heart disease.


Menzies School of Health Research

The Menzies School of Health Research is a partner of Charles Darwin University, and is based in Darwin. Menzies strives to achieve sustainable health improvements through excellence and leadership in research, education and capacity development. Their research is translated into effective partnerships and programs in communities across Australia and the Asia-Pacific region.

Menzies is a leader in ARF/RHD research. Projects partner with high-risk populations across Australia and the Pacific region to better understand and manage the factors that drive ARF and RHD. For more than 20 years, Menzies has made a significant contribution nationally and internationally to inform clinical best-practice and recommendations for care. Menzies was instrumental in establishing the Australian Government’s Rheumatic Fever Strategy, and has provided a base for RHDAustralia since 2009.


NACCHO

The National Aboriginal Community Controlled Health Organisation (NACCHO) is the national leadership body for Aboriginal and Torres Strait Islander health in Australia. NACCHO is based in Canberra and provides advice and guidance to the Australian Government on policy and budget matters while advocating for community-developed health solutions that contribute to the quality of life and improved health outcomes for Aboriginal and Torres Strait Islander peoples.

NACCHO members include 143 Aboriginal Community Controlled Health Organisations that operate in over 300 clinics across Australia. Member organisations are initiated and operated by local Aboriginal and Torres Strait Islander communities. 

NACCHO’s long-term objectives as an organisation are defined within its Constitution:

  • To alleviate poverty within the Aboriginal community.
  • The advancement of Aboriginal spirituality.
  • To provide constructive educational programs for Members of the Aboriginal community.
  • To deliver holistic and culturally appropriate health and health related services to the Aboriginal community.

RHD Action 

RHD Action is the global movement to reduce the burden of RHD in vulnerable populations throughout the world. RHD Action foundation partners are Medtronic Foundation, the World Heart Federation and Reach.

The founding partners work together to maintain a scientific and technical support community available to all countries. They are leading the international movement to reduce premature mortality from RHD, and contribute to the World Health Organization 25X25 non-communicable disease global monitoring framework and the World Heart Federation 25x25<25 campaign.

The RHD Action Alliance Resource Hub is a repository of tools and resources for health professionals, program coordinators, advocates and people living with RHD.


World Heart Federation

Founded in 1946, the World Heart Federation is the peak body for the global cardiovascular community, based in Geneva, Switzerland. The Federation represents more than 200 Heart Foundations, scientific societies, civil society and patient organisations in more than 100 countries, including Australia.

The World Heart Federation supports global academic and community-based activities such as: