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Rheumatic Heart Disease Australia

RHD Resouces

Survey yields comprehensive feedback for next edition of guideline

Thank you to everyone who participated in the ARF/RHD Guideline survey. The aim of this exercise was to gather feedback from the health workforce regarding information they would like in the new guidelines, and how they would best like to access it.

A total of 196 people participated in the survey. The majority of respondents are based in an urban setting, while 18% are rural and 29% are based in a remote area. Respondents were asked to identify as one of the following:

  • Aboriginal Health Workforce
  • Allied Health Workforce
  • Doctor
  • Health Policy / Health Management
  • Medical / Surgical Specialist
  • Nurse / Midwife / Nurse Practitioner
  • Researcher / Educator
  • RHD Program Staff

CONSULTING DISEASE MANAGEMENT GUIDELINES

Overall, gaining support for clinical practice is the most common reason respondents consult disease management guidelines. Nurses and allied health staff are the groups most likely to consult guidelines for clinical support, while doctors and specialists are most likely to consult guidelines for professional education and/or academic reference. Of the doctors who do consult guidelines for clinical support, half are based in a rural or remote area.

CONSULTING THE ARF/RHD GUIDELINE

The Australian ARF/RHD Guideline (2nd edition) is available as a printed book and printed quick reference guides, and as a PDF full document and quick reference guides on the RHDAustralia website. An abbreviated version is available via a smartphone app, including an ARF diagnosis calculator (also available via the RHDAustralia website)

The internet (PDF) version of the full Australian ARF/RHD Guideline is the resource most commonly referred to by all groups except nurses, who refer to the printed book slightly more frequently than the internet document. The PDF quick reference guides have also been used by nearly 30% of all respondents.

The smartphone app has been used by 32% of the doctors, 30% of the specialists and 22% of the nurses who completed the survey – half of these people are based in a rural or remote area. Thirty two percent of survey respondents have not consulted the ARF/RHD Guideline in any form.

CONSULTING OTHER GUIDELINES & PROTOCOLS

Sixty-seven percent of the survey respondents reported that they have consulted other disease guidelines or protocols for information on ARF and RHD. The CARPA Manuals are the most commonly consulted; only half of the respondents who reporting using CARPA are based in a rural or remote area.

UpToDate is commonly used among doctors and specialists, and the Australian Therapeutic Guidelines are used by all groups.

Of the people who have not consulted other disease publications for information on ARF and RHD, almost half have referred to the Australian ARF/RHD guideline information in some form.

This leaves 17% of the survey respondents reporting that they have not consulted any publication for information about ARF or RHD.

FEATURES OF DISEASE GUIDELINES

Survey respondents consider a printed book to be the least important, and electronic platforms that are easy to use and available offline to be the most important features of disease management guidelines. While the next edition will be available as a printed document, we also plan to invest in technology to ensure that the information is easy to access for all.

The additional comments received from survey respondents will be used to inform the writing and delivery of the next edition. There is overwhelming support for a national guideline that is comprehensive enough to support the academic community, but structured and delivered in a form to support busy clinical practice.