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Rheumatic Heart Disease Australia

RHD Resouces

END RHD CRE – Developing an endgame for rheumatic heart disease in Australia

END RHD Centre of Research Excellence brings a unique opportunity to build a comprehensive, evidence-based strategy for ending RHD in Australia.

The official launch of the END RHD CRE took place at the University of Sydney in May during the week of the RHDAustralia convened meeting and workshops, making the most of the opportunity to have the broader Australian RHD community together. A slideshow before the launch provided some historical context to RHD control and research in Australia and a walk down memory lane, with some images and stories from the archives and from more recently.

A presentation given by Professor Jonathan Carapetis setting the scene and highlighting key moments in RHD control and research in Australia was a welcome way to mark significant recent achievements of rheumatic heart disease control and to look ahead to the challenges of the future.

END RHD CRE – Investigators and partners meeting 

The aim of the NHMRC-funded Centre of Research Excellence in rheumatic heart disease is to develop targets for rheumatic heart disease control in Australia and a costed, stepwise strategy for achieving them. END RHD CRE Investigators and Partners meetings were held at the University of Sydney in May, complementing meetings arranged by RHDAustralia. 

Investigators and Partners of the END RHD CRE met formally throughout the week of the conference to set the agenda and determine the priority projects for the first year of the CRE based on three themes: epidemiology and bioscience, implementation and translation, and the RHD community. For an overview, the END RHD CRE prospectus is now available on the RHDAustralia website.

The meetings were an important opportunity to follow on from the first END RHD CRE Investigators meeting earlier this year in Perth, and to discuss the END RHD CRE with partners and other stakeholders involved in RHD research in Australia and internationally.

An all investigators meeting was also conducted, bringing together investigators from other RHD research projects including the AMOSS RHD in Pregnancy study based at the University of Technology in Sydney, the “Improving Secondary Prophylaxis for Rheumatic Heart Disease” study and the “Evaluating the genetic contribution to Rheumatic Heart Disease pathogenesis in Australian Aboriginal and Torres Strait Islander communities” project, both based at Menzies School for Health Research in Darwin, as well as a number of other researchers engaged in rheumatic fever and rheumatic heart disease.

The END RHD CRE encompasses all those with an interest in RHD. Anyone with a research interest in RHD is welcome to contribute, collaborate and be included within the broader body of work.

For further information - END.RHD.CRE.SMB@telethonkids.org.au